When Max was born, John and his then-wife Lauren Lambert were expecting a healthy baby girl. But life had other plans. Max arrived with an extra 21st chromosome, a diagnosis of Down syndrome, and a host of medical challenges including heart issues and sleep apnea. John described the moment as being hit with a “cosmic hammer.” Everything changed.
John stepped back from acting, choosing instead to “circle the wagons” and focus on his son. The early years were tough—doctor visits, therapies, and sleepless nights. But slowly, Max began to thrive. He grew into a “lovely, stubborn, opinionated young man” who adored his sisters, Billie Grace and Kate.
Max’s biggest challenge was language. His sisters, profoundly verbal, became his bridge to the world. John made it a mission to empower all three children, ensuring Max was never a burden but a gift. The siblings embraced him fully, shaping their worldview around compassion and inclusion.
Max loved swings. Not just any swings—he craved the “juice” of vestibular stimulation, that exhilarating arc at the top of a swing’s motion. So John built him giant swings out of 25-foot telephone poles. “Ridiculous,” he laughed, “but they yielded dividends.” It was a metaphor for their life: unconventional, bold, and full of love.
Music became another outlet. Max plays rhythm guitar in a band called Spec Labs, composed of neurodiverse musicians. He once played with his back to the audience, but now he faces the crowd with pride. He also works at Starbucks, contributing to his community with joy and dignity.
John didn’t stop at home. He became a fierce advocate for the Global Down Syndrome Foundation, helping raise awareness and push for research and policy change. He even influenced Scrubs to include a storyline featuring a patient with Down syndrome, bringing representation to the screen.
Every October, during Down Syndrome Awareness Month, John escorts models with Down syndrome down the runway at the “Be Beautiful, Be Yourself” fashion show. His advocacy is not just public—it’s personal, passionate, and persistent.
John once said, “I never wanted Max to be a burden to his sisters. I wanted them to be the instigators of activities done with their brother.” And they are. Together, they swing high, strum guitars, decorate Christmas trees with unbreakable ornaments, and live a life that defies expectations...




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